Support Groups

Sections:

The ALS Society of BC provides support groups for patients, caregivers, family members and friends to discuss issues related to living with ALS or PLS. These groups offer an open, friendly, and safe environment for people to share their experiences and challenges. Trained volunteers from ALS BC facilitate the groups and act as the main point of contact between the Society and the ALS, PLS, and Caregivers’ communities.

We understand that support groups aren’t for everyone, and that’s okay. However, we also recognize that these groups can be more than just a source of support – they can offer opportunities to learn, build a community, and create friendships. We understand that reaching out for help can be difficult, but please know we are here to support you. You’re not alone; we’re here to help you whenever you are ready.

ALS Monthly Meetings

The monthly ALS support groups provide an open, friendly, and safe environment for ALS patients, family members, friends, and caregivers to discuss issues related to living with ALS.

Having a diagnosis of ALS affects many areas of your life and people in this situation experience a variety of feelings. The monthly support groups are a safe place to decrease feelings of isolation, and loneliness and an opportunity to express feelings, learn about resources, build relationships, find a positive outlook on things, and talk about the challenges of living with ALS or caring for a loved one with ALS.

We welcome you to try the ALS support group whenever you feel ready. For more information, please contact our Patient Services Manager, Alexandra Guerrero, by phone: 604-278-2257 ext. 226 or email.

Meeting Regions

When: 3rd Friday of each month, and no meetings in December

Time: 1 – 2:30 PM

Hybrid Location: ZOOM & Kamloops  Seniors Village, 1220 Hugh Allan Drive

Facilitator: Pat Tomlinson
Phone 250-319-4516

When: 1st Wednesday of each month, except 2nd Wednesday of April

Time: 1:30 – 3 PM

Location: ZOOM

Facilitator: Shirley Theriault

When: Last Friday of each month, except 4th Friday of March, 3rd Friday of June, and no meetings in July, August and December

Time: 1 – 3 PM

Hybrid Location: ZOOM & Trinity Baptist Church, 1905 Springfield Road

Facilitators:
Louise Adderley

Louise Gauthier

When: Last Wednesday of each month, except Dec

Time: 2:00 PM – 3:30 PM

Location: ZOOM

Facilitator: Annie Wei

When: 3rd Sunday of each month, except last Sunday of Feb and May; and 2nd Sunday of June and Dec

Time: 2 – 3:30 PM

Location: ZOOM & To Be Announced

Facilitator: Ellen Mahoney
Phone 250-920-9502

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PLS Online Monthly Meetings

The monthly meetings for Primary Lateral Sclerosis is a free online community that helps people with PLS and their loved ones share their experiences and build supportive relationships. It is a safe and welcoming place for discussion, support, and the exchange of information about managing PLS.

We welcome you to try the PLS support group whenever you feel ready. For more information, please contact our Patient Services Manager, Alexandra Guerrero. Contact information below.

When: 3rd Wednesday of each month

Time: 1:30 – 3 PM

Location: ZOOM

Facilitator: Ward Murray

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Caregivers Online Monthly Meetings

Has someone in your family been diagnosed with ALS?  Are you looking for information on caring for a loved one with ALS?

Whether your family member is in the early stages of ALS or in the later stages, you are welcome to attend this group.  Members of the group discuss the practical side of caregiving with lots of information being shared on resources and coping strategies that can help. We also discuss the challenges of caregiving, including the emotional aspect of being a caregiver. The group is a safe and respectful place to bring forward any questions you might have. Caregivers tell us that attending the group helps them feel they are not alone; they appreciate the open sharing of knowledge and experience.  

We welcome you to try the Caregivers Group whenever you feel ready. Please contact us by email if you have questions or want more information on whether this group would fit for you.

When: 3rd Thursday of each month, except 2nd Thursday of March

Time: 10:30 AM – 12:30 PM

Location: ZOOM

Facilitator: Louise Adderley

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Loss, Grief, and Beyond Support Group

Losing a loved one to ALS/PLS is an incredibly difficult journey, and we want you to know that you are not alone. Our monthly online Loss, Grief, and Beyond Support Group provides a safe and compassionate space for individuals who have experienced the loss of someone dear to this devastating disease.

Whenever you are ready, you are welcome to join our group to share your experiences, find solace, and connect with others who understand. You also have the choice to just listen.

When: 2nd Tuesday of each month

Time: 10:00 AM – 11:30 AM

Location: ZOOM

Facilitator: Suzanne St John Smith

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Interested in Becoming a Support Group Facilitator?

If you’re interested in participating in or starting a support group in your area, we provide training to help you get started.

Find Out More Details
Ground Rules
Application Form

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Demographics

meetings in 2023 combination of in-person & virtual

Our goal is to establish at least 8 support group locations across British Columbia. Following the onset of Covid-19, these groups now operate in a hybrid model, offering both in-person and virtual sessions. In 2023, the ALS Society of BC conducted 78 support group meetins and logged 688 phone calls throughout the year.

Quick Stats

  • Support Group Meetings

    • 78

      2023

    • 96

      2022

    • 98

      2021

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