Notice of Annual General Meeting of Members

Date and Time: Tuesday, April 7, 2020 at 5:30PM

Location: Quilchena Golf & Country Club, Richmond

Click here to download the Agenda

Latest News

November 13, 2019 – #aFuturewithoutALS

Through the Walk to End ALS in BC our TEAM ALS BC & Yukon volunteers and donors help to fund the Canadian ALS Research Program and to support patient services programs provided by the ALS Society of BC.

Click here to read the full article.


October 31, 2019 – GivingTuesday Raffle Winners

Congratulations to the winners of our GivingTuesday Raffle:
Shirley Theriault from Ladysmith is the winner of the WestJet Trip for 2 + $500 Cash; and Janice Bruce from Vancouver is the winner of the Nintendo Switch Package!
Thank you to everyone who supported this year’s provincial raffle.

October 23, 2019 – Edaravone (Radicava) Update

  • MT Pharma has publicly announced that Radicava will be commercially available in Canada beginning on November 5, 2019. As we know, commercial availability is important news for people living with ALS who are currently or interested in accessing the drug. It may have implications for those on the MTPC Edaravone Supply Program or getting the drug through personal importation. With more details now available publicly, we will be sharing this information externally and directing the ALS community to the appropriate source for additional information.
  • Health Canada has confirmed that personal importation of edaravone will continue to be permitted until April 1, 2020. This includes people having the drug shipped to them as well as carrying it on their person.

Read more:

Prescription Status of Edaravone and Personal Importation

FAQs About Access to Radicava


July 26, 2019 – ALS Golf Tournament of Hope – SOLD OUT

Watch the CFJC TV ad


June 24, 2019 – WestJet Raffle Winner

Thank you to everyone who supported our WestJet raffle – Win a Trip for 2 Anywhere WestJet Flies!

Congratulations to the winner: Lazz Parker from Port Coquitlam!

In photo: Wendy Toyer, Executive Director ALS BC, Lazz Parker, and Kathy Ostrowercha, Team ALS BC & Yukon Volunteer


May 2019  –  June is ALS Awareness Month


May 1, 2019 –  May is a Leave Legacy Month


January 28, 2019 – AGM

Notice of Annual General Meeting of Members


November 1, 2018 – Gifts of Securities

Did you know that when you donate securities or mutual funds, there are benefits for you and the ALS Society of BC?  By donating securities, you can:

  • Eliminate the capital gains tax;
  • Get a larger tax receipt; and
  • Donate more and support the programs of the ALS Society of BC

Don’t miss out:   The deadline for a 2018 securities tax receipt is on December 20, 2018.

Read More


September 7, 2018 – WestJet Raffle WinnerThe ALS Society of BC congratulates Ray Swamy on winning a Trip for Two Anywhere West Jet Flies. The draw took place last month at the 10th Annual ALS Golf Tournament of Hope at the Dunes in Kamloops. Ray is the lucky ticketholder among over 300 raffle tickets sold.
Proceeds from the raffle support patient services programs provided by ALS BC.

In photo: Winner Ray Swamy from Surrey, BC receiving his prize from Gloria Robertson, TEAM ALS BC & Yukon volunteer from Kamloops.