June is ALS Awareness Month

FOR IMMEDIATE RELEASE

The month of June 2019 has been proclaimed by the Province of British Columbia as “June – ALS Awareness Month in BC”. On June 1st, BC landmark buildings will light up in the ALS colour purple to show support for people living with ALS.  Over 100 events are planned to be held in British Columbia during the month to raise funds to support ALS patient care and research.

Amyotrophic Lateral Sclerosis (ALS), commonly known as Lou Gehrig’s disease, is a fatal and rapidly progressive neuromuscular disease, which robs a person of their ability to speak, walk, eat or breathe – trapping an active mind in a deteriorating, immobilized body. There is no known cause or cure for ALS, yet. At any given time, over 400 British Columbians are living with ALS; over 3,000 in Canada.

The ALS Society of British Columbia is dedicated to providing direct support to ALS patients, along with their families and caregivers, to ensure the best life possible while living with ALS. Through supporting research, we are dedicated to finding the cause of, and cure for ALS.

     

 

On May 1st, to launch June ALS Awareness Month, the ALS Society of BC Advocacy Committee took part in Legislature Day, meeting the MLAs at the Legislature to ask for increased support for British Columbians Living with ALS particularly the ALS Center of Excellence project just launched by ALS BC.

  • BC Landmarks Supporting ALS Awareness Month to date are:
    • Northern Lights Display at BC Place, Vancouver
    • Harbour Centre, Vancouver
    • Canada Place Sails of Light, Vancouver
    • Spirit of Sail Sculpture, Kelowna
    • BC Parliament Buildings
    • Mr. PG, Prince George
    • Science World, Vancouver
    • Royal BC Museum, Victoria
    • Hard Rock Casino, Coquitlam
    • City of Coquitlam – Lafarge Lake Fountain; Light Columns (Pinetree Way at City Hall and the intersection of Lougheed Highway and Pinetree Way); Skytrain Guideway Pillars (Pinetree Way)

If you would like to join in and light up your building, please contact Danielle Capa at support@alsbc.ca

Other events taking place in support of ALS:

  • On June 1st in Victoria and surrounding area, volunteers will be on location at malls offering Cornflowers (the symbol of support for people living with ALS) by donation to ALS Research. If you would like to volunteer contact Oana Grant at flowerdaycoordinator@alsbc.ca
  • There are 14 Walks to End ALS that take place during the month of June. Funds raised at the Walks are directed to the ALS Society of BC patient services programs, and the ALS Canada Research Program. Visit walktoendals.ca/british-columbia for more details.
  • 110 PGA of BC golf professionals at over 35 courses throughout BC, have singed on for the 14th Annual PGA of BC Golfathon for ALS, golfathonforals.com. The PGA golf professionals will golf from sunrise to sunset to raise funds for the ALS Society of BC Patient Services Fund. Over $1.6 million raised to date!

For more information:

Wendy Toyer, Executive Director Email: w.toyer@alsbc.a    Cell: 778-999-6257         Web: www.alsbc.ca