News Release from Health Canada

The Government of Canada Improves Access to Affordable and Effective Drugs for Rare Diseases

March 22, 2023 – Ottawa, Ontario – The Honourable Jean-Yves Duclos, Minister of Health, announced measures supporting the first-ever National Strategy for Drugs for Rare Diseases, with an investment of up to $1.5 billion over three years. Through this new Strategy, the Federal Government will help increase access to, and affordability of, effective drugs for rare diseases to improve the health of patients across Canada, including children.

“Today’s announcement by the government of Canada is a step forward to provide access to affordable effective drugs for rare diseases. However, people living with ALS do not have the luxury of time. It is crucial, when a new treatment is approved by Health Canada, the approval process must not take months or years to be approved. This varies from province to province. The ALS Society of British Columbia has brought this issue to the attention of the Province of BC and will continue to advocate to ensure people living with ALS in BC will have access to new treatments for ALS exponentially.”

Wendy Toyer, Executive Director of the ALS Society of BC

News Release