ALS Canadian Alliance Patient/Caregiver Canada Wide Information Forum – 11.16.2023

If you or someone you know is dealing with the challenges of ALS, you can gain valuable insights and equip yourself with knowledge by watching the recording of the Virtual ALS Patient/Caregiver Information Forum hosted by the ALS Canadian Alliance on Thursday, November 16th, 2023. During the forum, patients and caregivers received information on critical topics such as Frontotemporal Dementia, the Canadian Neuromuscular Disease Registry, Strategies for Coping, Self-Care, and Medical Assistance in Dying (MAID) from expert speakers Dr. Sultan Darvesh, Katie Henley, Dr. Elizabeth Bannerman, and Dr. Wendy Johnston.

Forum sponsored by Amylyx Pharmaceuticals

The ALS Canadian Alliance

The Alliance collectively strives to enhance the quality of life for all people living with and affected by ALS and support research to find the cause and cure.

We do this by:

  1. Building partnerships. 
  2. Working collaboratively.
  3. Uniting to connect Canadians living with ALS. 
  4. Advocating for people living with ALS.
  5. Building capacity.