ALS Centre of Excellence Fundraiser

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Background

The ALS Society of BC is a registered nonprofit charity providing support to ALS patients, their families and caregivers endeavoring to ensure the best available quality of life while living with ALS. The Society also supports National Research Programs directed to finding the cause of, and a cure for Amyotrophic Lateral Sclerosis.

The Government of BC currently funds three programs in support of patients with ALS: The Provincial Respiratory Outreach Program (PROP), Technology for Independent Living Program (BCITS) and the Communications for Youth and Adults Program (CAYA).

A Provincial ALS Clinic was started in 1980 under the guidance of a UBC Geographic Full-time Physician-Scientist (Professor-Emeritus Andrew Eisen). Since his retirement from UBC in 2005, the ALS Clinic (now housed at GF Strong Rehabilitation Centre) is funded through Vancouver Coastal Health. The Clinic is being served by part-time Neurologists, who although supplying excellent clinical care have not been able to maintain the prior International stature that the clinic enjoyed which was associated with the ability to run clinical trials and clinical research.

To achieve this essential need, ALS BC has on deposit $1 million which was recently matched by the Province of BC.  As well, confirmed a partnership with the University of British Columbia, Faculty of Medicine aimed at recruiting a full-time dedicated ALS Clinician-Scientist, who will champion and direct the Provincial ALS Centre in patient care, clinical trials, available in most other Provinces in Canada, and research.

“TODAY WE HAVE SOME HOPE, WITH THE DIRECTION OF THE ALS SOCIETY TO RAISE FUNDS AND IN COOPERATION WITH THE GOVERNMENT WE CAN DREAM OF A NEW STATE OF THE ART FACILITY.

TO MAKE THIS DREAM A REALITY WE ARE WORKING WITH THE ALS SOCIETY OF BC AND CREATING A FUNDRAISER WITH 100% OF FUNDS GOING DIRECTLY TO THIS NEW CENTRE. A CENTRE THAT WILL PROVIDE A HOPEFUL OUTLOOK FOR BC RESIDENTS THAT ARE DIAGNOSED WITH ALS”;

Jeff Derby living with ALS.

The Goal
$5 million

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